A 25 year old local woman Amy George has tested positive to the Huntingon gene. A killer brain disease which has no cure but she’s fighting not for herself but the many others who are fighting the rare disease.
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The young mother knows one day the disease may take her .
‘’I refuse to let this disease get the best of me. Being an advocate takes all my frustrations, angers, and fears about Huntingtons and turns it into a positive. I have hope and believe in a cure of Huntingtons Disease. In order to find better treatments and a cure there needs to be more awareness and money raised. So here I am vowing to wear something Blue until the end of the year to make some noise about HD. I'm hoping to raise $6000, but id love to raise much much more,’’
‘’In 2009 I tested positive for the Huntington gene, which mean's that at some stage in my life I will develop Huntingtons Disease.
Huntington's disease is an incurable, hereditary brain disorder. It is a devastating brain disorder for which there is no currently 'effective' treatment. Nerve cells become damaged, causing various parts of the brain to deteriorate. The disease affects movement, behaviour and cognition - the affected individuals' abilities to walk, think, reason and talk are gradually degrades to such a point that they eventually become entirely reliant on other people for their care. Huntington's disease has a major emotional, mental, social and economic impact on the lives of patients, as well as their families. I want to raise more awareness for HD.
It was said that HD is not a rare disease but a rarely know disease.
Sad isn't it. Such a devastating disease and its probably something you've never even heard of.’’
She is asking locals and the business community to donate money and also wear blue to raise awareness.
https://give.everydayhero.com/au/hope-for-huntingtons
